So... Rory had her 2 month checkup at the pediatrician yesterday- she gained a POUND in the last week (now 8lbs 12oz). She is starting to get folds and chubby cheeks. She also got her immunizations, except for HiB due to a nationwide shortage. Today Rory had her follow up with Dr Torres (her GI doctor) who was pleased with her weight gain. Rory is still getting most of her nutrition from the NG tube and formula but we were given the go ahead to breastfeed (instead of pumping and giving her measured amounts) and they will follow her weight. They have also told us to take her off the pump feeds for 2 hours a day. So.. slowly decreasing her tube feeds and increasing her oral intake.
Other good news- we were told once she hits about 6kg (13.2lbs) she should be fine for the second surgery (she's estimating sometime in April!) The big cautionary thing is that about 50% of babies who have the pull through procedure develop enterocolitis afterwards. This is the infection that caused Rory to not absorb anything and have diarrhea and stay int he hospital forever and ever. This time, she will be started on antibiotics BEFORE the surgery and continue it for a while afterwards.
Alex is really happy to have everyone home. He is so sweet with Rory, gives her toys, sings to her and likes to sit with her. He's been enjoying the warm weather, going to playgrounds and running around, swinging and seeing friends. Today we went to the zoo with Tess and Lila- we saw the elephants, gorillas and the invertebrates. He was fascinated by the spider and the spiderwebs and butterflies! I'll try to post pics later (I think we may have figured out how to do this from my computer)
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